Parents of Children and Young People With Long-Term Physical Health Conditions-Experiences of Navigating School
CONCLUSION: This parent-focused study strengthens an existing needs analysis for CYP, adding to evidence showing significant unmet needs in school. Parents play a crucial role in addressing failures to meet these needs. Navigating the system to secure support can have negative implications for home-school relationships and parent well-being. Requirements for parental agency to ‘battle’ through […]
The resilience of parents and carers who administer medicines to children at home: a qualitative systematic review protocol
BACKGROUND: Parents and carers are increasingly expected to administer prescribed medicines to their children at home. However, parents and carers are not always able to administer medicines as directed by the prescriber and ultimately must rely on their own judgment to administer medicines safely. This process is often unseen but may contain important learning for […]
The resilience of parents and carers who administer medicines to children at home: a qualitative systematic review protocol
Morris, S., Pini, S., Fylan, B. et al. The resilience of parents and carers who administer medicines to children at home: a qualitative systematic review protocol. Syst Rev. 2025 Jan 23;14(1):22. https://doi.org/10.1186/s13643-024-02724-9
Using photo-elicitation to explore young people’s short-term experience of and adherence to orthodontic retainers
CONCLUSIONS: Understanding early experiences of retainer wear can help clinicians to provide timely and well-targeted interventions and information. Co-constructing unique adherence strategies may help to overcome the initial adaptation phase, with particular emphasis on understanding the individual. J Orthod. 2025 Jun;52(2):194-204. doi: 10.1177/14653125241304442. Epub 2025 Jan 15. ABSTRACT OBJECTIVE: To investigate young people’s experience of […]
Using photo-elicitation to explore young people’s short-term experience of and adherence to orthodontic retainers
Smorthit, K., Littlewood, S., Maroke, T., Pini, S., & Barber, S. (2025). Using photo-elicitation to explore young people’s short-term experience of and adherence to orthodontic retainers. J Orthod. 2025 Jan 15:14653125241304442. Online ahead of print. doi.org/10.1177/14653125241304442
Qualitative Study Examining Attendance for Secondary School Pupils With Long-Term Physical Health Conditions
For some children and young people (CYP) with long-term physical health conditions (LTPHCs) attending school can be difficult. There is a lack of evidence documenting their school attendance experiences, how schools manage absence for these children, and subsequent effects. This study utilised an existing dataset from eighty-nine 11-18-year-olds in mainstream secondary schools in the United […]
Adoption of technology enabled care to support the management of children and teenagers in rheumatology services: a protocol for a mixed-methods systematic review
INTRODUCTION: COVID-19 catalysed a rapid move to provide care away from the hospital using online communication platforms. Technology enabled care (TEC) continues to be an important driver in progressing future healthcare services. Due to the complex and chronic nature of conditions seen within paediatric rheumatology, TEC may lead to better outcomes. Despite some growth in […]
The INSCHOOL project: showcasing participatory qualitative methods derived from patient and public involvement and engagement (PPIE) work with young people with long-term health conditions
CONCLUSIONS: Young people have much to offer and the INSCHOOL project has shown that researchers can meaningfully involve young people in all aspects of research. Consistent PPIE resulted in a project where the voices of young people were prioritised throughout and power imbalances were reduced, leading to meaningful participant-centred data. Res Involv Engagem. 2023 Oct […]
“Waiting for the best day of your life”. A qualitative interview study of patients’ and clinicians’ experiences of Perthes’ disease
CONCLUSION: This is the first study to describe how children/families and clinicians experienced receiving or providing treatment in Perthes’ disease. The results indicate the need for robust evidence to support treatment decisions. Children and families valued feeling involved in the clinical decision-making process. Clinicians acknowledged the central importance of providing patient-centred care, particularly in the […]