Data Resource Profile: Yorkshire Specialist Register of Cancer in Children and Young People (Yorkshire Register)
No abstract Int J Epidemiol. 2023 Feb 8;52(1):e18-e26. doi: 10.1093/ije/dyac195. NO ABSTRACT PMID:36228114 | PMC:PMC9908036 | DOI:10.1093/ije/dyac195
Long-term care for people treated for cancer during childhood and adolescence
Worldwide advances in treatment and supportive care for children and adolescents with cancer have resulted in a increasing population of survivors growing into adulthood. Yet, this population is at very high risk of late occurring health problems, including significant morbidity and early mortality. Unique barriers to high-quality care for this group include knowledge gaps among […]
Social outcomes after childhood illness: the missing measure
No abstract Arch Dis Child. 2023 Apr;108(4):e8. doi: 10.1136/archdischild-2021-323513. Epub 2022 Mar 31. NO ABSTRACT PMID:35361611 | DOI:10.1136/archdischild-2021-323513
Standardizing the surgical management of benign ovarian tumors in children and adolescents: A best practice Delphi consensus statement
CONCLUSION: This best practice Delphi consensus statement emphasizes the importance of managing children with BOTs through a well-defined oncological MDT strategy, in order to optimize risk stratification and allow fertility preservation by ovarian-sparing surgery wherever possible. Pediatr Blood Cancer. 2022 Apr;69(4):e29589. doi: 10.1002/pbc.29589. Epub 2022 Feb 4. ABSTRACT AIM: No widely agreed consensus protocols exist […]
Childhood cancer survivorship care during the COVID-19 pandemic: an international report of practice implications and provider concerns
CONCLUSIONS: The pandemic necessitated changes in LTFU service delivery, including greater use of virtual LTFU care and risk-stratification to identify CCS that need in-person evaluations. J Cancer Surviv. 2022 Dec;16(6):1390-1400. doi: 10.1007/s11764-021-01120-9. Epub 2022 Jan 12. ABSTRACT PURPOSE: Long-term follow-up (LTFU) care is essential to optimise health outcomes in childhood cancer survivors (CCS). We aimed […]
Long-term unmet supportive care needs of teenage and young adult (TYA) childhood brain tumour survivors and their caregivers: a cross-sectional survey
CONCLUSION: This research provides leads to improving supportive care and long-term follow-up services. Psychological support represents the biggest gap in care. Understanding unmet needs and recognising what services are required are critical to improving quality of long-term survival. Support Care Cancer. 2022 Mar;30(3):1981-1992. doi: 10.1007/s00520-021-06618-7. Epub 2021 Oct 12. ABSTRACT INTRODUCTION: The supportive care needs […]
Inconsistencies in fertility preservation for young people with cancer in the UK
CONCLUSIONS: Inequality exists in provision of fertility preservation for children with cancer across the UK. There is lack of formalised government funding to support international guidelines, with resultant geographical variation in care. Centralised funding of fertility preservation for children and young adults is needed alongside establishment of a national advisory panel to support all PTCs. […]
International variation in childhood cancer mortality rates from 2001 to 2015: Comparison of trends in the International Cancer Benchmarking Partnership countries
Despite improved survival rates, cancer remains one of the most common causes of childhood death. The International Cancer Benchmarking Partnership (ICBP) showed variation in cancer survival for adults. We aimed to assess and compare trends over time in cancer mortality between children, adolescents and young adults (AYAs) and adults in the six countries involved in […]