Educational attainment of children with congenital heart disease in the United Kingdom
CONCLUSION: Children with CHD have lower educational attainment compared with their peers. Deficits are evident from school entry and increase throughout primary school. Eur Heart J Qual Care Clin Outcomes. 2024 Aug 8;10(5):456-466. doi: 10.1093/ehjqcco/qcad068. ABSTRACT BACKGROUND: Educational attainment in children with congenital heart disease (CHD) within the UK has not been reported, despite the […]
Evaluation of cardiovascular risk factors in long-term survivors of adult- and childhood-onset brain tumours: a pilot study
CONCLUSION: The phenotype of both CO and AO brain tumour survivors is characterized by an adverse metabolic profile and body composition, putatively placing long-term survivors at increased risk of vascular morbidity and mortality. Endocr Connect. 2023 Jul 12;12(8):e220491. doi: 10.1530/EC-22-0491. ABSTRACT BACKGROUND: Survivors of childhood brain tumours (SCBT) and teenage and young adult cancer survivors […]
Identifying the important social outcomes for childhood cancer survivors: an e-Delphi study protocol
INTRODUCTION: Optimising the health of childhood cancer survivors is important given the high long-term survival rate coupled with a significant late effects burden. Included within the WHO’s definition of ‘Health’ are social outcomes. These are of interest given their impact on adult functioning within society, complex interactions with physical and mental health outcomes and potential […]
Data Resource Profile: Yorkshire Specialist Register of Cancer in Children and Young People (Yorkshire Register)
No abstract Int J Epidemiol. 2023 Feb 8;52(1):e18-e26. doi: 10.1093/ije/dyac195. NO ABSTRACT PMID:36228114 | PMC:PMC9908036 | DOI:10.1093/ije/dyac195
Long-term care for people treated for cancer during childhood and adolescence
Worldwide advances in treatment and supportive care for children and adolescents with cancer have resulted in a increasing population of survivors growing into adulthood. Yet, this population is at very high risk of late occurring health problems, including significant morbidity and early mortality. Unique barriers to high-quality care for this group include knowledge gaps among […]
Social outcomes after childhood illness: the missing measure
No abstract Arch Dis Child. 2023 Apr;108(4):e8. doi: 10.1136/archdischild-2021-323513. Epub 2022 Mar 31. NO ABSTRACT PMID:35361611 | DOI:10.1136/archdischild-2021-323513
Standardizing the surgical management of benign ovarian tumors in children and adolescents: A best practice Delphi consensus statement
CONCLUSION: This best practice Delphi consensus statement emphasizes the importance of managing children with BOTs through a well-defined oncological MDT strategy, in order to optimize risk stratification and allow fertility preservation by ovarian-sparing surgery wherever possible. Pediatr Blood Cancer. 2022 Apr;69(4):e29589. doi: 10.1002/pbc.29589. Epub 2022 Feb 4. ABSTRACT AIM: No widely agreed consensus protocols exist […]
Childhood cancer survivorship care during the COVID-19 pandemic: an international report of practice implications and provider concerns
CONCLUSIONS: The pandemic necessitated changes in LTFU service delivery, including greater use of virtual LTFU care and risk-stratification to identify CCS that need in-person evaluations. J Cancer Surviv. 2022 Dec;16(6):1390-1400. doi: 10.1007/s11764-021-01120-9. Epub 2022 Jan 12. ABSTRACT PURPOSE: Long-term follow-up (LTFU) care is essential to optimise health outcomes in childhood cancer survivors (CCS). We aimed […]
Long-term unmet supportive care needs of teenage and young adult (TYA) childhood brain tumour survivors and their caregivers: a cross-sectional survey
CONCLUSION: This research provides leads to improving supportive care and long-term follow-up services. Psychological support represents the biggest gap in care. Understanding unmet needs and recognising what services are required are critical to improving quality of long-term survival. Support Care Cancer. 2022 Mar;30(3):1981-1992. doi: 10.1007/s00520-021-06618-7. Epub 2021 Oct 12. ABSTRACT INTRODUCTION: The supportive care needs […]