An assessment of the attitudes, knowledge, and education regarding the health care needs of LGBTQ patients with cancer: results of an ESMO/SIOPE global survey
Abstract Background: Lesbian, gay, bisexual, transgender, and queer (LGBTQ) individuals with cancer have specific and unique health issues and needs. Reports persist of inequalities in the care provided for these patients, making it important to assess the attitudes and knowledge of LGBTQ needs among those who provide care. Materials and methods: The European Society for Medical Oncology […]
The Impact of Specialist Care on Teenage and Young Adult Patient-Reported Outcomes in England: A BRIGHTLIGHT Study
Purpose: In England, health care policy promotes specialized age-appropriate cancer services for teenagers and young adults (TYA), for those aged 13-24 years at diagnosis. Specialist Principal Treatment Centers (PTCs) provide enhanced age-specific care for TYA, although many still receive all or some of their care in adult or children’s cancer services. Our aim was to […]
Delivered relative dose intensity in adolescent and young adult germ cell tumours in England: Assessment of data quality and consistency from clinical trials compared to national cancer registration data
Adolescent and young adults (AYA) with germ cell tumours (GCT) have poorer survival rates than children and many older adults with the same cancers. There are several likely contributing factors to this, including the treatment received. The prognostic benefit of intended dose intensity is well documented in GCT from trials comparing regimens. However, evidence specific […]
Have we made progress in taking care of adolescents and young adults with cancer? Results of a European multi-professional survey
CONCLUSION: There is considerable opportunity for many organisations to work together in raising the profile of AYA cancer related issues, in providing education and in encouraging research and collaboration. Tumori. 2023 Dec;109(6):546-554. doi: 10.1177/03008916231183477. Epub 2023 Jul 24. ABSTRACT BACKGROUND: It is well documented that traditional health care models do not meet the specific needs […]
Data Resource Profile: Yorkshire Specialist Register of Cancer in Children and Young People (Yorkshire Register)
No abstract Int J Epidemiol. 2023 Feb 8;52(1):e18-e26. doi: 10.1093/ije/dyac195. NO ABSTRACT PMID:36228114 | PMC:PMC9908036 | DOI:10.1093/ije/dyac195
Cancer, Fertility and Me: Developing and Testing a Novel Fertility Preservation Patient Decision Aid to Support Women at Risk of Losing Their Fertility Because of Cancer Treatment
BACKGROUND: Women with a new cancer diagnosis face complex decisions about interventions aiming to preserve their fertility. Decision aids are more effective in supporting decision making than traditional information provision. We describe the development and field testing of a novel patient decision aid designed to support women to make fertility preservation treatment decisions around cancer […]
Pathways to Diagnosis for Teenagers and Young Adults with Cancer in European Nations: A Pilot Study
CONCLUSION: Focused research upon the mechanisms underpinning complex cancer pathways, and focusing that research upon specific cancer types within TYA may be the next key areas of study. J Adolesc Young Adult Oncol. 2018 Oct;7(5):604-611. doi: 10.1089/jayao.2018.0045. Epub 2018 Jul 23. ABSTRACT PURPOSE: The diagnosis of cancer is often prolonged in teenagers and young adults […]