Does Joint Care Impact Teenage and Young Adult’s Patient-Reported Outcomes After a Cancer Diagnosis? Results from BRIGHTLIGHT_2021
CONCLUSIONS: No evidence that patient-reported outcomes differ by categories of care existed. This may suggest the evolution of TYA cancer services has led to similar outcomes regardless of care category. However, given the small sample size it is not possible to draw firm conclusions. Cancers (Basel). 2025 Dec 2;17(23):3868. doi: 10.3390/cancers17233868. ABSTRACT BACKGROUND: Healthcare policy […]
Exploring the Coordination of Cancer Care for Teenagers and Young Adults in England and Wales: BRIGHTLIGHT_2021 Rapid Qualitative Study
CONCLUSIONS: Coordination of care is mostly developing; however, the shared vision and goals dimension did achieve full active collaboration. The implementation of a service specification will address regional leadership requirements, but resources are required to extend the delivery of interventions to support coordination and collaboration, allowing the commissioned model of care to be delivered safely. […]
Educational outcomes for children and young people with cancer: study protocol for a population-based cohort study using linked education and hospital data from England
INTRODUCTION: Childhood cancer survivors (CCSs) experience educational disruptions during and following treatment, yet robust, longitudinal evidence on educational performance remains limited. We will investigate differences in educational outcomes between CCSs and non-cancer peers during primary and secondary school. We will also explore how sociodemographic factors and age at diagnosis contribute to potential differences in General […]
Understanding the needs and experiences of young cancer patients, caregivers and healthcare professionals in the UK following childhood fertility tissue preservation (FTP): a qualitative study informed by patient and public involvement and engagement
CONCLUSIONS: PPIE provided valuable insights into the experiences of childhood cancer survivors with preserved fertility tissue, their parents and clinicians, highlighting priority areas to guide future research and ensure it addresses the concerns of care recipients. Our findings suggest that childhood cancer survivors who preserve tissue for future fertility need personalised follow-up care with information […]
Parents’ experiences of paediatric end-of-life care in the UK: a multisite qualitative study
CONCLUSIONS: Bereaved parents’ experiences of care at the end of life are too inconsistent. Feeling heard is crucial; without it, there is no foundation on which adequate end-of-life care can be built. Care must be tailored to the circumstances of each family and should continue after a child’s death and into bereavement. BMJ Support Palliat […]
Contribution of ethnicity and deprivation to paediatric critical care outcomes in the UK, 2008-21: a national retrospective cohort study
BACKGROUND: Evidence from UK paediatric intensive care units (PICUs) demonstrates increased incidence of admission among children of Asian and Black ethnicity and children residing in more deprived areas. We aimed to investigate whether mortality in PICU is associated with ethnicity and child poverty. Lancet Child Adolesc Health. 2025 Sep;9(9):646-654. doi: 10.1016/S2352-4642(25)00156-7. Epub 2025 Jul 10. […]
Ethnicity and childhood cancer survival
No abstract BMJ. 2025 Jul 3;390:r1350. doi: 10.1136/bmj.r1350. NO ABSTRACT PMID:40610032 | DOI:10.1136/bmj.r1350
Parents’ experiences of the financial and employment impacts of their child receiving end-of-life care: a national qualitative study
CONCLUSIONS: Financial hardship is a known consequence of having a child with a life-limiting condition, especially at the end of life, and adds considerable stress to an already painful situation, with the aftermaths continuing into bereavement. The impact is exacerbated by parents’ need to reduce work so they can spend time caring for their dying […]
High-flow nasal cannula therapy versus continuous positive airway pressure for non-invasive respiratory support in paediatric critical care: the FIRST-ABC RCTs
CONCLUSIONS: Among acutely ill children requiring non-invasive respiratory support, high-flow nasal cannula met the criterion for non-inferiority compared with continuous positive airway pressure for time to liberation from respiratory support whereas in critically ill children requiring non-invasive respiratory support following extubation, the non-inferiority of high-flow nasal cannula could not be demonstrated. Health Technol Assess. 2025 […]