Advances In Ewing Sarcoma Research (AESR)
A collaboration between the Bone Cancer Research Trust (BCRT) and the University of Leeds bringing together Ewing sarcoma researchers from across the globe to share progress and identify priorities for future research, which will lead to improved outcomes for patients.
SIOPEN and SIOPEN Liquid Biopsy Group
An association of healthcare professionals including clinicians, radiologists, surgeons, research scientists and patient advocates across Europe and beyond working together to improve outcomes for children with neuroblastoma, a specific type of cancer. SIOPEN runs a number of large clinical trials examining how best to treat neuroblastoma. This provides a better understanding of how the disease […]
Yorkshire Cancer Register
The Yorkshire Specialist Register of Cancer in Children and Young People (YSRCCYP) is a regional population based register of cancer diagnoses. It contains detailed demographic and clinical information on children and young adults aged 0-39 years diagnosed with cancer since 1974. The YSRCCYP facilitates a programme of research investigating the epidemiology of cancer in young people and […]
PICANet
PICANet collects data from Level 3 (Paediatric Intensive Care) Units and has been commissioned by NHS England and Improvement to undertake a 2-year development project to expand its clinical audit to include data collection and reporting of children in discrete Level 2 PCC units (sometimes referred to as ‘High Dependency Units’). Please see our Level 2 […]
UKSTORE
Treatments for illnesses like cancer can cause harm to other parts of the body. As a result, up to 1 in 3 young people who have treatment suffer damage to their ovaries and testicles. This damage can stop them being able to make a baby in the future. However, children can now freeze some ovary […]
Researcher Showcase: Adam Galloway
Adam is a Clinical Academic Physiotherapist in Children’s Orthopaedics. He is currently completing his HEE/NIHR Clinical Doctoral Research Fellowship (CDRF) (now DCAF) on a rare hip disease in children called Perthes’ Disease. He has a clinical base at Leeds Children’s Hospital as part of the Children’s Physiotherapy team and an academic base at Chapel Allerton […]
Researcher Showcase: Lynne Schofield
Lynne is a highly specialist physiotherapist working with children with Primary Ciliary Dyskinesia, a rare lung condition. Qualifying in 2004, Lynne initially worked in Bradford, an area where PCD is more common than Cystic Fibrosis. With an interest in working with young people with PCD, her MSc research involved understanding their lived experiences. Working with […]
Researcher Showcase: Stephen Morris
Stephen Morris is a NIHR Doctoral Fellow at the University of Leeds. He is also a part-time clinical pharmacist at Leeds Children’s Hospital. His main goal is to help improve the experience of families who use medicines, in order to improve their health outcomes and minimise any harm from medicines use (either directly and indirectly).Stephen’s […]
Researcher Showcase: Claudia Heggie
Claudia is an NIHR Doctoral Research Fellow and Specialist Paediatric Dentist. Her research focuses on the prevention of painful ulceration in and around the mouth (oral mucositis). This is a common side effect of cancer treatment, that occurs in up to 8 in every 10 children who receive chemotherapy. Specifically, she is interested in the […]