Transforming Outcomes Through Data Linkage

Delivering a step-change in understanding through innovative data linkages.

Background

Most paediatric research concentrates on physical morbidity and health service activity, with little focus on the wider impact that living with and beyond life-threatening illnesses has on children and young people, and their families and society.

Image for Transforming Outcomes Through Data Linkage

Project Team

Aims

We want to transform our understanding and support for children and young people living with and beyond life-threatening illnesses. We will:

  • Identify and understand inequalities in health and social outcomes.

  • Use information on health inequalities to develop an integrated care plan for the most vulnerable children across society.

  • Identify how admission to paediatric intensive care units (PIC) affects the educational, social, psychological and physical health outcomes.

  • Identify how treatment for childhood cancer and other diseases affects the educational, social and psychological outcomes of patients (for whom physical late effects are increasingly well-defined).

  • Work with local and national partners in the NHS, Social Services, Leeds City Council, Department for Education and Department for Work and Pensions to develop a strategy and influence policy in these areas.

Sub-projects

Photo of girl using a microscope

Haematological Outcomes

A study looking at various aspects of survival parameters and […]

Learn more
Photo of girl using a microscope

UKSTORE

Treatments for illnesses like cancer can cause harm to other […]

Learn more
Photo of girl using a microscope

PICANet

PICANet collects data from Level 3 (Paediatric Intensive Care) Units […]

Learn more
Photo of girl using a microscope

Cancer Register

The Yorkshire Specialist Register of Cancer in Children and Young […]

Learn more